EDITH

The EDITH project, which is funded by the 3rd Health Programme from the European Union, started at 1 January 2017 and will last for three years.

There is an important variation in practice in the overall management of ESKD (End Stage Kidney Disease) and access to dialysis and kidney transplantation in Europe. By investigating the reasons for this variability, the EDITH project aims to examine the effect of differing kidney disease treatment modalities and organ donation and transplant practices on health expenditure and patient outcomes.

The ERA-EDTA Registry in the Academic Medical Center and the Italian National Transplant Center will - together with collaborating stakeholders like renal registries, the European Renal Association-European Dialysis and Transplant Association, the European Kidney Patients Federation,and the French Agence de la biomédecine - address the epidemiology and costs of different treatment modalities for ESKD. This includes the assessment of:

  • the frequency of the various treatment modalities for ESKD
  • factors that influence the choice of those treatment modalities by patients and doctors
  • the impact of treatment modality choice on health outcomes like patient survival and quality of life, but also on health care budgets
  • Other work packages will set up a European Living Donor Registry and a European Kidney Transplant Registry for the follow-up of living donors and transplant recipients.

    More information on the EDITH project can be found here.